Memory may seem even more mysterious when there’s less of it—why do we remember this and not that? Other times, it seems to make perfect sense, especially with Alzheimer’s patients, who often remember earlier memories and forget later ones.Read More
Transitioning from a cross-cultural neophyte into a culturally competent warrior is a precarious and arduous process in medicine. It is typically a journey accomplished on one’s own with little guidance, training or support. It’s also a journey that requires deep self-reflection and the ability to objectively critique the culture of biomedicine.Read More
Openness vs secrecy. These subjects are familiar to anyone who has ever struggled with a serious health condition.Read More
As I read, I felt with you the fear, the pain, the madness.
The would-be caretakers – police, EMT’s, nurses, doctors – all too human and apathetic. Aren’t we all? I, too, am angry with them – for taking your dignity, and giving nothing in return.Read More
Her first night on call she is assigned the care of a man with AIDS. He is rail thin, on the slow train to death. He was once a person just like her, but now he seems frightening, repulsive, and dangerous, although endlessly pitiful.Read More
This is a blog about Intima and narrative medicine in general and all that we can read and absorb from this excellent online journal. Every issue grabs my attention for the poetry, articles and the blogs that respond to other people’s work.
My poem "Exchange" was written after my son came home from working in the Far East. He brought with him a girlfriend who had also been working with him for the British Council. Poom was Thai. We had never met before and they arrived in the evening. She was exhausted from the long flight. I had prepared a meal and over supper, a nurturing and nourishing time and good time to talk with new and old friends. She told me that her father had died and she was still very sad. We had candles on the table but we lit another one for her father and placed it in an important position near the flowers that seem to symbolize new growth, new seasons.
Then Poom started to tell us that she had had Stevens-Johnson Syndrome, a syndrome I had never heard of. But as she told us her story another narrative emerged, the emotional need to now pass on the story. This for me is what narrative medicine is all about. It’s telling our stories to a health professional who can understand what is going on for us emotionally, intellectually and physically. Poom felt, at this supper in a country she didn’t know, not long after her father’s death and this dreadful illness, that she needed to talk about it and try and rid the experience from her mind in a strange country. This was her narrative being told right now.
I was very struck by the wisdom in Vivian Lam’s Crossroad's essay "This Game We Play Called Dying." Even dying has a narrative for each individual although by the time we are in the clutches of death we may be too ill, too sick, to tell our story to anyone. So it is the people who care for us who have to interpret our story at this stage of our lives. Hence the need, as Vivian Lam says, to be able to know whether or not the dying person wants someone with him/her now or whether she/he’d rather take the final steps alone. Therefore it is the responsibility (and I mean responsibility) of the nearest person to the dying to have found out this part of the narrative while it is possible to do so. This may be the health professional who cares and treats the dying with compassion. Dying is the final and may be the most important part of the narrative.
Wendy French is a poet, whose latest collection of poems is Thinks Itself A Hawk (Hippocrates, 2016). Her collaboration with Jane Kirwan resulted in the book Born in the NHS (Hippocrates, 2013). She won the Hippocrates Poetry and Medicine prize for the NHS section in 2010 and was awarded second prize in 2011. She has worked for the past twenty years in healthcare settings. She was Poet in Residence at the UCH Macmillan Centre from April 2015-2016 and this year will be working with patients/caregivers on writing memoirs. She is one of six poets invited to Bucharest to work with MA students on translations of their novels into English. She currently is writing poems to celebrate Waterloo Bridge.
Rooms can confine us or give us a special place to inhabit. Hallways and corridors can lead us where we want to go or lead us astray. Two works in the Fall 2016 Intima, one fiction and one nonfiction, use these physical spaces to represent the emotional struggles that come with severe or mysterious illness.Read More
The mechanical properties of the heart are well understood. Tricuspid valve calcification may lead to stenosis, resulting in myocardial hypertrophy and decreased cardiac output. On the other end of the spectrum, mitral valve prolapse may lead to eventual mitral regurgitation. Eventually, chronic tendinous injury to the chordae tendineae attaching the valve to the papillary muscles may occur, producing a flail leaflet. It is simple: the heart strings produce the music of harmony.
But what of discord? What of when the harmony fails us?Read More
Medicine is full of the extraordinary every day. And really, how much extraordinary can one person absorb?Read More
We learn in medical school to take full social, family and physical histories with a new patient. We use checkboxes to run down the list of points in each history. We are taught to be thorough and document each answer.
Transitions are equally important in the hospital as day shifts to night and night to day and we hand off patients we may have been taking care of the past 12 to 24 hours. Just as children need time to adjust to a transition, so do our patients as they transition to a new day, new staff, and possibly a new baby.Read More
We are often powerless in the face of death or illness to do much besides watch; we are forced to recognize “the uselessness of love to give her breath.” This feeling of helplessness we experience, both as physicians and as caretakers, forces us to reevaluate the way we understand ourselves and the purpose behind the role we play as a family member or a healthcare provider.Read More
The game of death is quite addictive.
Of course, the stakes are high—it’s the end of all things, the last chance, last glance, last words. All-or-nothing; last-ditch effort. A lifetime of apologies, love, and tenderness condensed into a prognosis of months, days, a few gasping breaths.Read More
As I examined
Surely, one of the best things about the practice of narrative medicine is that it allows doctors to reveal that they are just as human as the rest of us – capable of egregious mistakes as well as heroic deeds.Read More
When she was diagnosed with an aggressive and rare form of ovarian cancer, I urged her to come from Albany for a second opinion and lined her up with top gynecological oncologists, and she felt safe.Read More
Dialogue requires that a participant be attentive to the unspoken needs and
There’s something you should know about your doctor’s clinical judgement: It relies on a flawed premise. As doctors, our medical education conditions us to look for patterns. Pattern recognition allows us to triage and identify emergencies. It helps us distinguish pulled muscles from heart attacks. It’s a powerful, if imperfect, tool.Read More
Decades before, I was a college student sent on a respite mission with a severely disabled child whose braced, tethered body in a crib and relentless cries through the night completely unnerved me.Read More
Jenny Qi's poem first caught my attention because I carry two lines from Bob Hass: All the new thinking is about loss / In this it resembles all the old thinking. Death is the great equalizer, each of us must confront mortality.Read More