Going through airport security and other awkward life moments with an ‘invisible’ disease: A reflection by breast cancer advocate Jenny Burkholder

“I am neither woman nor threat. Just something they don’t know how to categorize,” writes general practitioner and breast cancer survivor Katherine Zippel in the essay “Body of Evidence” (Intima, Spring/Summer 2025), an intimate reflection of a demoralizing airport security search of her prosthetic breasts. Living with metastatic breast cancer, I feel the agony of this statement and have often felt “neither woman nor threat” and uncategorizable. 

Though I know at some point my situation will be different, for now my disease is invisible. I dance, practice yoga, walk, parent my children, show up at school events, go on dates with my husband, and enjoy a glass of wine. I have not lost my hair. So when I tell people that I will be in treatment for the rest of my life and that every five weeks, I receive an Enhertu infusion, which flattens me for a week, they are incredulous. “But you look so healthy,” they say. “But you don’t seem like you have cancer,” they say. It's always an odd and destabilizing moment when I must confirm my reality for someone else. I don’t fit neatly into a box.

“It’s true,” I want to scream, but I get it. My own feelings are conflicted. On one hand, I do not want to be categorized only as a cancer patient, yet on the other, living with metastatic breast cancer is an important part of my identity. It is my life. Over the years, I have learned to live in a both/and psychic space, a place of affirmation and possibility that allows me to live two truths at once. [Note: Burkholder’s essay “Disambiguation” movingly chronicles Burkholder’s life experience.]

At the end of “Body of Evidence,” Zippel hears her husband’s voice in her head: The wind is always moving because it has somewhere to go. For her, these words “remind me that I am still here, still standing.”

“Thank you, Katherine,” I say aloud. Thank you for affirming what I know is true: Being alive is both heartbreakingly messy and wondrously brimming with joy.

Jenny Burkholder

Jenny Burkholder is a writer, teacher and breast cancer advocate living and working in Pennsylvania. Formerly the Montgomery County Poet Laureate, Burkholder is the author of the poetry chapbook “Repaired” (Finishing Line Press, 2016). Her poetry and creative nonfiction have appeared in North American Review, So to Speak, 2River View, The Healing Muse and The Maine Review, among others. She is the co-host of the podcast “OVERexpressed & OUT,” which amplifies the voices of Philadelphia-area, modern-day pioneers–women transforming their communities from the inside. Her essay, Disambiguation, appears in the Spring/Summer 2025 issue of Intima: A Journal of Narrative Medicine