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    • A Letter to My Younger Self by Candice Kim
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    • Beholding Something Fine | Laura Johnsrude
    • Bypass by Benjamin Drum
    • Calluses | Laura Vater
    • Contents Have Shifted | Kristin Graziano
    • Curtis Prout, MD, Morale Doctor
    • Desk Peach | Nivedita Gunturi
    • Dr. Ortega and the Fajita Man | Richard B. Weinberg
    • Flo Owned a Beauty Shop... | Jose Bufill
    • The Healing Book | Dustin Grinnell Spring 2020
    • Mangoes | Rachel Prince
    • NOISE | Aparna Ragupathi
    • Not Today, Not Tonight | Donald Kollisch
    • Old Scrubs | Bruce Campbell
    • Physics and Big Lips | Malavika Eby
    • The Reluctant Ferryman | Colleen Cavanaugh
    • Reverse Landing Strip | Liddy Grantland
    • Sea Glass | Alexandra Godfrey
    • The Shape of the Shore | Rana Awdish
    • Something True | Sonny Fillmore
    • String of Pearls | Elizabeth Ryder
    • Things I Learned From Pole Dancing | Elise Mullan
    • Top Surgery | Angela Tang-Tan
    • Try to Turn a Cowboy Vegan | Towela King
    • Valleys Between Us | Sophia Gauthier
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    • Waiting Room | Shruti Koti
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    • The Work of Love | Amanda Ruth
    • Wound Care | Craig Blinderman
    • Your First Pediatric Intubation | Rachel Kowalsky

Black Women's Health in the Age of Hip Hop and HIV/AIDS: A Narrative Remix by Nghana Tamu Lewis

November 7, 2025 Intima: A Journal of Narrative Medicine

Nghana Tamu Lewis, author of Black Women's Health in the Age of Hip Hop and HIV/AIDS: A Narrative Remix(Ohio State University Press, 2025)

Researcher, writer, educator and judge Nghana Tamu Lewis offers readers a compelling conversation that lies at the intersection of Black feminist thought, public health, and sociocultural analysis. Her book takes a concentrated approach to understanding just how profound Black media was at acknowledging and resisting the disproportionate toll that HIV/AIDS has taken on Black women and girls.

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In Book Reviews, Narrative Medicine Tags HIV, structural racism

Jane Kenyon: The Making of a Poet by Dana Greene

October 10, 2025 Intima: A Journal of Narrative Medicine

Dana Greene. Jane Kenyon: The Making of a Poet

In Jane Kenyon: The Making of a Poet (University of Illinois Press, 2023), the late Dana Greene (1942-2023), a dean emerita of Oxford College of Emory University, whose books include Denise Levertov: A Poet’s Life and Elizabeth Jennings: The Inward War, capitalizes on revealing new material to tell the poet’s story from Kenyon’s own perspective. The first major Jane Kenyon biography since 2002 (1), this layered biography goes well beyond others: Much of Kenyon’s narrative had been previously told from the viewpoint of her well-known husband—the former U.S. Poet Laureate, Donald Hall—but in this reexamination, readers may come to a greater appreciation of Kenyon’s work as an entity that is distinct and separate from his influence.

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In Book Reviews Tags poetry, depression, leukemia, narrative
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Legacy: A Black Physician Reckons with Racism in Medicine by Uché Blackstock

September 19, 2025 Intima: A Journal of Narrative Medicine

Legacy: A Black Physician Reckons with Racism in Medicine by Uché Blackstock

In the memoir “Legacy, A Black Physician Reckons with Racism in Medicine, Uché Blackstock narrates her journey of self-discovery and empowerment as a Black female physician within the historical and social context of the United States’ legacy of racism.

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In Memoir, Narrative Medicine Tags structural racism, emergency medicine, Inequity

It Doesn’t Have to Hurt: Your Smart Guide to a Pain-Free Life by Sanjay Gupta, MD

September 2, 2025 Intima: A Journal of Narrative Medicine

Author photo: CNN John Nowak

In the pages of It Doesn’t Have to Hurt, Sanjay Gupta demonstrates his own humanity by his ability to validate and feel the pain of others in depth and with understanding and then articulates a strategy for those afflicted to free them from their pain and lessen their suffering.

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In Book Reviews Tags pain, chronic pain, neurosurgery, Sanjay Gupta
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Before the Next Crisis: Untold Stories of Public Health and Why They Matter by Tista S. Ghosh

August 19, 2025 Intima: A Journal of Narrative Medicine

Before the Next Crisis: Untold Stories of Public Health and Why They Matter is Tista S. Ghosh’s urgent wake-up call to a country already drifting into pandemic amnesia. Drawing on her experience as a CDC-trained epidemiologist, chief medical officer for the state of Colorado, and health journalist, Ghosh examines the U.S. response.

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In Book Reviews, COVID-19 Tags COVID-19, Public Health, book review
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Exquisite Moments of Sorrow and Grace: A memoir by Kenneth Weinberg, MD

July 16, 2025 Intima: A Journal of Narrative Medicine

Kenneth Weinberg’s memoir, Exquisite Moments of Sorrow and Grace shares scenes from his interesting, passionate, and non-linear career. Throughout the book, Weinberg models what it will take for young physicians to stay engaged as caring, narrative-centered clinicians in the future.

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In Memoir, Narrative Medicine Tags book review, Kenneth Weinberg, narrative medicine, emergency medicine
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Everything Is Tuberculosis: The History and Persistence of Our Deadliest Infection by John Green

June 28, 2025 Intima: A Journal of Narrative Medicine

Everything is Tuberculosis (Crash Course Books, 2025)

Reviewer Grace Judd writes, “[Green] highlights effective TB initiatives that have offered real solutions to patients…Everything is Tuberculosis is an urgent reminder of the challenges and failures in global health. While it celebrates the power of global collaboration, it also underscores that the primary barrier to TB eradication is not biomedical advances, but how society has selected to inequitably distribute resources.”

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In Book Reviews, Global Health Tags Global Health, Tuberculosis, LMICs, Pharma, Inequity

A Carnival of Losses: Notes Nearing Ninety by Donald Hall

May 21, 2025 Intima: A Journal of Narrative Medicine

A Carnival of Losses was published by Houghton Mifflin Harcourt in 2018 shortly after Donald Hall’s death.

In A Carnival of Losses: Notes Nearing Ninety, a collection of essays by Donald Hall published by Houghton Mifflin Harcourt in 2018, shortly after his death, the poet provides a compelling discourse on a strikingly diverse range of topics. All were written in his eighties, with the subject matter spanning his more-than-six-decade career as a poet, essayist and literary critic. Woven throughout his commentary are reflections on writing as a craft, the importance of family to his legacy and the loss of his wife – fellow poet, Jane Kenyon – to leukemia at the age of 47. This is a powerful collection and a worthwhile read, not only for lovers of poetry or the medical humanities, but also for anyone who has experienced the loss of someone who is closest to them.

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In Caregiving, Death, Memoir, Narrative Medicine Tags poetry, poet, grief
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The Invisible Kingdom: Reimagining Chronic Illness by Meghan O’Rourke

May 7, 2025 Intima: A Journal of Narrative Medicine

The Invisible Kingdom: Reimagining Chronic Illness was published by Riverhead Books, an imprint of Penguin Random House, 2022.

What does it mean to be sick when medicine refuses to believe you are ill? In The Invisible Kingdom: Reimagining Chronic Illness, poet, journalist and memoirist Meghan O’Rourke invites readers into the haunting, liminal world of unvalidated illness—a place all too familiar to millions suffering from autoimmune and complex chronic conditions. O’Rourke’s work is both a personal chronicle and a searing cultural critique, combining lyricism with investigative rigor. For readers of Intima, especially those who straddle the spaces of caregiving, patienthood, and medicine, this book is not merely relevant—it is essential.

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In Book Reviews, Health, Memoir, Medical Training Tags chronic illness, narrative medicine, doctors, patients, doctor stories
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Becoming a Better Physician: Insightful and Inspirational Stories from Attending Physicians, Residents, and Medical Students, edited by Mark Allan Goldstein and Kathy May Tran

February 23, 2025 Intima: A Journal of Narrative Medicine
Becoming a Better Physician - book cover image

Every obstacle in the life of a medical student or physician leaves a mark. No one can truly know how they will cope with a spouse’s death, academic failure, a parent’s dementia, work-life upheaval, sudden trauma, or chronic debility. If left unexamined, the scars accumulate since, of course, the work of medicine and healthcare must continue unabated.

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In Book Reviews, Caregiving, Creative non-fiction, Essays, Health, Narrative Medicine Tags doctors, medical school, empathy
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Shattered, a memoir by novelist, screenwriter and playwright Hanif Kureishi

February 4, 2025 Intima: A Journal of Narrative Medicine

Ecco

Hanif Kureishi is a novelist, screenwriter, and playwright. He is the author of nine novels, including The Buddha of Suburbia (winner of the Whitbread Award for Best First Novel), The Black Album, Intimacy, and The Nothing. His screenplay of My Beautiful Laundrette was nominated for an Oscar, and he is the recipient of the PEN Pinter Prize and the Chevalier de l’Ordre des Arts et des Lettres. He was made a Commander of the Order of the British Empire. He lives in London.
Author hoto by Kier Kureishi

In December 2022, novelist, screenwriter (My Beautiful Launderette) and playwright Hanif Kureishi was at his girlfriend Isabella’s apartment in Rome when he had a fall after fainting due to a change in blood pressure. Because of how he landed, he ended up hyperextending his neck resulting in immediate tetraplegia. His memoir Shattered (Ecco, 2025) is his account of the following year he spent in various hospitals and rehabilitation centers as he tried to understand how he would live moving forward, as the accident reshaped his view of himself and his body, especially what that means for him as a writer.

 Throughout the book, Kureishi has the reactions one would expect from a life-changing event such as his. He cycles through Kübler-Ross’s stages of grief, though he never reaches acceptance (he has moments of hope, though), and he spends most of his time in anger and depression. Kureishi shares moments of disbelief—how waking up (when he’s able to get a few hours of sleep) can be the worst moment of the day, when he realizes all over again what has happened to him. It’s like “re-entering a horror movie that I had thought, for a moment, I could turn off.” He sometimes suffers from envy, especially when friends who visit him talk about going on vacation and he recalls what it’s like to travel with such ease.

He doesn’t say much about the care he receives, but that’s mainly because of the boring routines of a long hospital stay. Early in the book, he does provide details, even interjecting humor to his description of receiving an enema, but once he’s established that routine, he shifts his focus away from the medical descriptions. Similarly, given that he moves through five different hospitals/rehabilitation centers, he doesn’t truly get to know the people who care for him. Not only that, he notices the turnover in the staff, which prevents him from knowing them more fully. That’s a frustration for him, as he seeks to build relationships in a place where he’s spending several months of his life.

Empathy plays a part in how he sees his caregivers, as he reflects on all they do for him and how they see their job as a calling, despite the long hours and low pay. The experience is as humbling as it is existentially exasperating: He learns how to ask for help, as he has lost the ability to do anything for himself. Kureishi makes a clear contrast between the hospital in Italy, where he spends the first five months, and the various locations in England, which range from grim to adequate. There’s an implied criticism of the British National Health Service, but he never comes out and skewers it directly. As an American reader, I couldn’t help but wonder how much all of his care would have cost in the U.S. system and how somebody who makes their living as a writer would be able to afford it, even with insurance.

The main strength of Shattered consists of reflections on his identity after the accident. Early on, he writes: “I am a stranger to myself. I don’t know who I am any more. Someone new is emerging.” After ten months, he reflects, “I can feel my identity slipping, as if I am forgetting who I am and becoming someone else, or almost nothing. I never thought my identity would be scrubbed out or superseded by something else.”

Part of that change revolves around the idea of disability. He has gone from being a person who could function in a society built for those who are physically able to move around without assistance to somebody who requires help for every action they want to do. Daily activity becomes heightened for him: For example, Kureishi describes how those helping him eat either give him food too quickly or not quickly enough, a distinction most readers wouldn’t have thought about but one that makes perfect sense once one stops to consider it. For his return home to his house in London, a number of accommodations are needed, including adding a bathroom and bed to the main floor. The most mundane activities must be navigated with care. Kureishi chronicles, for example, the amount of attention he has to pay to the uneven quality of the sidewalks when he and one of his sons go to a pub.

He devotes a small amount of time to thinking about sex, as well as a discussion of psychoanalysis (which he has been in for decades), but not how he and Isabella will continue to have any type of intimacy. Instead, he talks about the sex he had in the past and his lack of interest in it now. He’s frank about it, even making Isabella uncomfortable in relating a story about a supposed orgy he was a part of (the story does not live up to that description), but he doesn’t seem concerned with it moving forward.

A Writer’s Life, Interrupted
Given how much of Kureishi’s life consists of writing, that part of his identity comes in for the most scrutiny. He wonders what life is like as a writer who is unable to pick up a pen and physically write. The only way he was able to compose Shattered, for example, was through dictation and the help of his family. It is telling that Kureishi begins writing this book within a couple of weeks after his accident, as his way of processing the world. In his first entry, dated 6 January 2023, he ends by saying, “I am speaking these words through Isabella, who is slowly typing them into her iPad. I am determined to keep writing, it has never mattered to me more.” One of the reasons his identity as a writer is so important is because it has provided him with an identity of his choosing, unlike the racial identity British society, especially his peers, put upon him when he was younger. After providing a list of words other people called him, he “found [his] own word, [he] stuck to it, and never let it go. It is still [his] word.” Some of the strongest sections of the book, certainly some of the best quotes, come from his thoughts about writing and being a writer.

Occasionally, he forgets the privilege he does still have as a male writer. He tells the story of one of his students who is working on a novel. Before giving a draft to an editor or agent, she asks a sensitivity reader to evaluate it to see if it contains anything that is offensive. Kureishi is appalled by such an idea and spends several pages talking about how writers of the 20th century would not have taken such an approach, that the point of literature is to transgress, especially writers such as Dostoevsky, Sylvia Plath, Jean Rhys, Céline, William Burroughs, Henry Miller, James Baldwin, Franz Kafka, and D.H. Lawrence, all of whom pushed boundaries and forced readers to see a wider world. He fails to notice that most of them are male—Rhys and Plath are the exceptions— and while there have been female writers who were literary disrupters, it has been (and continues to be) much more difficult for them to do so.

 One other aspect of his identity that he explores is the nature of his body. He admits he hasn’t thought about his body much during his life, as he’s not an athlete and hasn’t suffered from any other significant ailments or injuries, but this accident has brought him more in touch with that body, even as it has become more of an object. At times, he talks about parts of his body as if they don’t belong to him, given his lack of control over them, but he’s also fascinated with what his body can and can’t do. His hands are of particular interest, given they are the conduit for his writing. He regularly mentions how he has given up any kind of embarrassment about his body, given how often people undress and wash and handle him, which causes him to see his body as more of an object, but also to appreciate the lack of judgment from those who do such work.

 His list of acknowledgements is longer than for most books, given how many people have taken care of him. He spends some of the time in the book talking about the effects such care has taken on his family. His now-fiancée Isabella (they get engaged during the course of the book) has effectively given up her work as a PR agent for writers and festivals to be there for him, and his three sons work out a rotation of visits to help her. He describes the change that happened:

“Two weeks ago a bomb went off in my life which has also shattered the lives of those around me. My partner, my children, my friends. All my relationships are being renegotiated. It makes everybody a little crazy, it changes everything. There is guilt and rage, and people resent their dependence on one another and the fact they can’t do everything for themselves. My accident was a physical tragedy, but the emotional outcomes for all of us are going to be significant.”

He also talks about the wide variety of friends and even acquaintances who come to see him, with Isabella even joking about how busy his room often is. There are days where several people end up there at the same time, having lengthy intellectual conversations, much like they would have had in the past. On most of those days, he’s suffering too much to truly enjoy them, but it’s clear he noticed them, given that they show up in his account. He realizes that such an accident has taught him who his true friends are, and he reflects on when he might not have been as good of a friend as he should have. Like most of us, he resolves to be different moving forward.

I would be remiss if I neglected to mention the humor he works throughout the book, given the lack of jollity in his situation. He tells the story of a time before his accident when a nurse mistook him for Salman Rushdie—the author of Midnight’s Children and one of Kureishi’s friends—while a nurse was flipping him over, preparing to put a finger in his “backside.” Kureishi jokes that if he had written Midnight’s Children, he would have “gone private,” implying that he would be able to afford private care and wouldn’t be in such a public setting, given the threat on Rushdie’s life. When he relates a story about having a long conversation with a doctor in Italy about raising children, translations of Russian novels, the doctor’s performing surgery on a Mafia don, among other subjects, Kureishi ends by saying, “I have to say that becoming paralyzed is a great way to meet new people.”

The book ends with his going home to a different life, but one where he can still find some joy in the world. His book is not treacly or saccharine, as he doesn’t try to deliver any life lessons he’s learned along the way, nor does he end with any implication that moving forward will be easy. However, he has begun to try to see the small parts of life that will continue to provide happiness. In fact, he reflects on the collaboration of editing this book with his son Carlo and how much he has enjoyed that. Even if he doesn’t pick up a pen again, it’s clear Kureishi will find a way to communicate with the world around him.—Kevin Brown


Kevin Brown (he/him) teaches high school English in Nashville. He has published three books of poetry: Liturgical Calendar: Poems (Wipf and Stock); A Lexicon of Lost Words (winner of the Violet Reed Haas Prize for Poetry, Snake Nation Press); and Exit Lines (Plain View Press). He also has a memoir, Another Way: Finding Faith, Then Finding It Again, and a book of scholarship, They Love to Tell the Stories: Five Contemporary Novelists Take on the Gospels. Find out more about him and his work on social media sites at @kevinbrownwrites or at http://kevinbrownwrites.weebly.com/.

In Creative non-fiction, Essays, Health, Hospitals, Memoir, Narrative Medicine Tags book review, memoir, medical memoir
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Moving Along: A graphic medicine novel about Parkinson’s Dance by Lisbeth Frølunde, Maria Bee Christensen-Strynø and Louise Phillips

December 14, 2024 Intima: A Journal of Narrative Medicine

Parkinson’s disease (PD) is a progressive neurodegenerative condition clinically identified by the hallmark features of shaking, stiffness and slowness. PD is also marked by a multitude of non-motor symptoms like constipation, cognitive changes and sleep disorders. Any number of symptoms and intensities can exist in each patient, leading to a remarkably heterogenous patient population. While effective symptomatic treatments exist, the only known means of quantitatively slowing progression to date is exercise, specifically cardiovascular exercise that increases heart rate (1).

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In Book Reviews, Caregiving, Health, Medical Research, Narrative Medicine Tags parkinson's disease, dance therapy, graphic comics, graphic medicine, caregivers
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But I Still Have My Fingerprints, a book of poetry and healing by Dianne Silvestri, MD

November 13, 2024 Intima: A Journal of Narrative Medicine

Dianne Silvestri’s second book of poetry But I Still Have My Fingerprints (CavanKerry Press, 2022) artfully documents her shattering experience as a doctor diagnosed with acute myeloid leukemia. Raw, real and unique poems give acute insight into a life-altering trauma through the double lens of a physician who has become the patient.

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In Caregiving, Health, Hospitals, Poetry Tags acute myeloid leukemia, poetry, narrative medicine
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The Occasional Human Sacrifice: Medical Experimentation and the Price of Saying No by bioethicist Carl Elliot

October 2, 2024 Intima: A Journal of Narrative Medicine

In The Occasional Human Sacrifice: Medical Experimentation and the Price of Saying No (W.W. Norton, 2024), bioethicist Carl Elliot begins his ethical exploration into whistleblowing in medical practice and research, surprisingly, with a personal account. Working within a discipline that has historically sought to separate subjective insights from detached analyses of putatively objective principles and systems of thought, Elliot details his experiences, calling attention to a psychiatric research study at his home institution that appeared to contribute to the suicide of one its participants. He recounts the painstaking process of bringing the injustice to light and holding his institution to account, only to find himself progressively ostracized, denigrated and ultimately thoroughly disillusioned.

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In Medical Research, Medical Training, Hospitals, Health, Narrative Medicine Tags medical research, medical school, medical ethics, whistleblowers
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Reckoning: Ten Seasons in Fire Island Pines by Miles Cigolle

September 18, 2024 Intima: A Journal of Narrative Medicine

"Reckoning: Ten Seasons in Fire Island Pines" by Miles Cigolle

In Reckoning: Ten Seasons in Fire Island Pines (Sunstone Press), the reader follows an extended period in the life of a gay man, Miles Cigolle. The book, written and narrated by Cigolle as its central character, covers the years from 1988 to 2000. Reckoning is thus an individual, personal story, but one that also reveals a critical moment of social history, highlighting how the supportive communal structure that was engaged in the early responses to AIDS had many roots in a place synonymous with sybaritic hedonism.

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In Book Reviews, Co-Constructing Narrative, Health, Medical Research, Memoir, Narrative Medicine, pandemic Tags Fire Island Pines, medical memoir, memoir, AIDS, HIV, gay life
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A Body Made of Glass: A Cultural History of Hypochondria by Caroline Crampton

August 29, 2024 Intima: A Journal of Narrative Medicine

In A Body Made of Glass: A Cultural History of Hypochondria (Ecco, Harper Collins, 2024), author Caroline Crampton combines what she refers to as a cultural history of hypochondria with a memoir of her experiences with anxiety disorder, allowing the history of it to inform her life and vice versa. Lest readers think they have nothing to learn about their own lives from a study of hypochondria, especially if they’ve never experienced it before, Crampton, a writer and critic who lives in England, reminds them that hypochondria has much to teach them about health. She goes even further by connecting the disease to gender and the mind-body divide.

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In Book Reviews, Co-Constructing Narrative, Creative non-fiction, Health Tags book review, hypochondria, illness narratives
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Scivias Choreomaniae, a poetry collection about madness and mystics, psychosis and prisons by Lake Angela

August 14, 2024 Intima: A Journal of Narrative Medicine

Scivias Choreomaniae (Spuyten Duyvil, 2024), a poetry collection by Lake Angela, a poet, translator and dancer-choreographer from Lake Erie, transports readers to an outdated prison for schizophrenics and psychiatric inmates from medieval times to the time-space of the contemporary United States.

All who pass through the “mad-houses” are held behind wrought-iron words, including the author as dance therapist, whose great failure culminates when her augmenting madness fells her into a similar psychiatric ward. But her unusual success is that before her downfall, the poet uses dance therapy to rot the iron words of prison cells and chains, exposing the core of the institution where doctors and medical staff treat the patients with brutality.

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In Book Reviews, Caregiving, Health, Hospitals, Poetry, psychiatric biography, schizophrenia Tags poetry, poems, bipolar disease, prisons, psychosis, madness, medical humanities
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The Sky Was Falling: A Young Surgeon’s Story of Bravery, Survival and Hope by Cornelia Griggs

August 12, 2024 Intima: A Journal of Narrative Medicine

The sky is falling. I'm not afraid to say it. A few weeks from now, you may call me an alarmist, and I can live with that. Actually, I will keel over with happiness if I'm proven wrong," wrote Dr. Cornelia Griggs in her March 19, 2020, OpEd in The New York Times. Dr. Claire Unis reviews this reflective memoir.

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In Caregiving, Book Reviews, COVID-19, Creative non-fiction, Hospitals, Memoir, Mothers Tags COVID-19, narrative medicine, pandemic, pediatrician, pediatric
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The Quiet Room: A Timeless Memoir Unpacking Schizophrenia by Lori Schiller and Amanda Bennett

July 16, 2024 Intima: A Journal of Narrative Medicine

In this review, Alyssa Sales outlines the author’s experience with schizophrenia as seen from multiple perspectives.

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In Memoir, Narrative Medicine, schizophrenia Tags schizophrenia, memoir, medical memoir
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Our Long Marvelous Dying by Anna DeForest

July 9, 2024 Intima: A Journal of Narrative Medicine

One moment of Anna DeForest’s Our Long Marvelous Dying, just published by Little, Brown and Company, captures the immense grief at the root of their new novel:

 In the interval between giving a dose of intravenous opioids and seeing the peak effect, I will sometimes pass the time by catching up on the news. There is almost always a disaster imminent…You get used to it…

A sense of resignation and detachment pervades the story told by an unnamed narrator, who works as a palliative-care fellow in New York City after the peak of the early COVID-19 pandemic.  In the first chapters, she recounts aspects of her training as a specialist, who “serves as a sort of illness interpreter, bringing the jargon of clinical medicine into the life and language of the patient who is living the experience.” It’s a specialty also “trained to be comfortable with [prescribing] the stronger stuff: morphine, hydromorphone, fentanyl.” As the fellow learns these skills, an assessment of how her specialty serves the dying patient and her colleagues becomes clear:

The trouble that the other doctors have is not a lack of gentleness. Well, not only that. More often what they cannot do is tell the truth. They pack death up in so much misdirection, talk about the success or failure rate of this or that procedure or treatment, when the truth is the patient will be dead soon no matter what we come up with to do in the interim. That’s the part they need a specialist to say.

 We also get glimpses of the narrator’s personal life: her relationship with her husband Eli, the dark ground-floor apartment they rent, the chess games she plays with her young niece Sarah, who her brother has left with them. We learn about the death of her father. Throughout the novel, the narrator seeks ways to withstand suffering—the global and local, present and past—in her daily existence.

Anna DeForest (they/their) is the author of the novels A History of Present Illness and Our Long Marvelous Dying, and a palliative care physician in New York City.

Photo by Stephen Douglas

Our Long Marvelous Dying is DeForest’s second novel and in some ways narratively follows A History of Present Illness, published in 2022, which challenged the lore of medical education through the story of a student managing her own personal trauma and the wider trauma of American healthcare. Reviews of DeForest’s first novel linked the writer, who works as a palliative care physician at Memorial Sloan Kettering Cancer Center in New York City, to the narrator—and the same might apply to Our Long Marvelous Dying, as many moments seem pulled from the firsthand experience of a physician versed in hospice and palliative care.

In many of the novel’s settings, bereavement surrounds the narrator and often consumes her. But the grief that grounds the story and proves most unsettling for the narrator stems from the death of her absent and unkind father. DeForest structures the story to reflect the narrator’s apprehension towards him. We see him in pieces between scenes in the hospital, and can’t put him together as a whole until the very end. In managing the arrangements for his death, the narrator takes us through their fraught relationship. His favorite story to tell her romantic partners when meeting them for the first time is how whenever she cried as an infant, he said “I never liked you from the beginning.” But the cruelty of his abandonment is in its persistence—he is a “latent monster,” a “ghost” from whom she never stops craving acknowledgement.

Beyond her family, the narrator guides us through additional layers of grief in a way that we never stay long enough in one place to take up the devastation. The world offers constant tragedy—floods, destruction of coral reefs, extinction of thousands of species. And every day the COVID-19 pandemic rages. The reader hears about the refrigerated trucks lining New York City blocks, but what the reader sees in specific detail are the causalities for healthcare workers: their loneliness and coping mechanisms of alcohol use, disordered eating and SSRIs for suicidal ideation. During rounds, for example, an attending physician recounts the peak of the pandemic and says absently, “I am on an SSRI.” Meanwhile, the narrator notices the spring air coming through the window in his office that has “no bars, no screen. Fourteen floors up, with a view of the Empire State Building.” There is an omnipresent threat of self-harm, if not from one tragedy, then from the weight of so many others. 

But Our Long Marvelous Dying is not a trauma dump. It confronts the obvious truths we train ourselves to overlook: the truth of death in a hospital, the truth of our own progression to death. It forces the question of “what is the purpose of living?” and does not give a satisfying answer. In this way, the novel’s title does not allude to the hidden deaths in the hospice wings, it alludes to us. Without despair, the narrator states “that all of us will die…that all of us are dead already.” The narrator acts as a palliative-care physician for us all, interpreting the jargon and euphemisms that drown the simple truth of daily tragedy.  The sugar coating has dissolved, and she wants to communicate that “no one is coming to comfort you” and “nothing will help.”

 One of the most provocative aspects of DeForest’s work is their ability to situate the reader in the day-to-day clinical world. The narrator normalizes death, dying and the grim collapse of human bodies that happens, not because of dispassion, but because of routine. While contributing to the book’s undercurrent of grief, the hospice unit provides meaning on a quotidian basis. On a phone call, in response to a mother’s dismay that her daughter may die before they arrive, the narrator reflects: “of course she can and does die alone.” In another situation, she reflects that an aging actress “dies the same as anyone.” These are tragedies that are contained, expected and managed. 

Despite submission to muted sorrow, the narrator still attempts to manage her trauma. The palliative-care fellowship itself, in the view of its program director, draws those with personal layers of grief in addition to their professional interest. For the narrator, her work keeps the despair at bay and allows her to reflect on the minutiae of existence—for example, describing her underground commute as “the long stretch of track between where I live and everything that matters.” In revolving her life around the care of others, she does not have to generate her own will to continue living.

She also tries to endure by tempering her connections, especially to her husband Eli, a “well-adjusted” and handsome chaplain with a network of friends who adore him. The constant in their marriage is the restrained threat of its end, from “red flags” or laments that “it isn’t working.” This sense of detachment also manifests with her niece Sarah, who she describes as her “temporary daughter” while Sarah’s father is unable to care for her due to his substance use. We learn that an intergenerational dearth of attention and love has conditioned the narrator to the security of pain rather than love; the cycle of abuse contributes to her decision not to have children. The place where she seeks connection is a monastery out of the city, where she arrives and departs anonymous to her peers.  

While there is no neat resolution, the protagonist steadily approaches the grief that eludes her—the death of her father. We see this through the lengthening of the scenes themselves. Initially, we learn about her father in brief moments between scenes of her palliative-care fellowship; by the end, we are allowed to linger as she sorts through his belongings. For a person who asks uncomfortable questions (Are you happy?) and speaks revolutionary words in a hospital (death and dying), the narrator takes her time to confront his death. She asks a rabbi at the hospital what to do after death about the bad acts her father committed in his life. Just as she can cut through medical euphemisms and jargon, he cuts through her question: “The weight you feel, he says, is not a need to forgive anyone. Just call it grief. Call it trauma.”

In Our Long Marvelous Dying, DeForest challenges our discomfort with death and instead leads with loss and our search for meaning within it.—Margo Peyton


Margo A. Peyton is a resident physician in neurology at Massachusetts General Hospital and Brigham and Women's Hospital. Prior to medical school at Johns Hopkins, she worked in film and television story development for DreamWorks Animation. Her essays and book reviews have appeared in The New England Journal of Medicine, JAMA and the Boston Society of Neurology, Neurosurgery, and Psychiatry.

In Caregiving, Book Reviews, COVID-19, Death, Hospitals, Medical Training Tags death & dying, fathers, medschool, hospice
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